This is yet another GI update. I finally have an answer for all my GI troubles the past few months. It’s not the answer I wanted, but it’s an answer. Which means I’m closer to getting better.
All my stomach problems started in Sept. 2016.
It took me until December to find the right docs and the right tests. I had a colonoscopy done and they believed it was a viral infection and that’s what I was treated for. Eventually, I was feeling better for the most part.
Around the beginning for Feb. my stomach cramping came back back. I was having major GI discomfort, along with other issues. I reached out to my GI doc and he agreed we needed to schedule another colonoscopy.
By the next week, I was not only having GI issues, but I was having a lot vision trouble. My eyes were extremely bloodshot (see below), sensitive to light and it really hurt to focus on things up close. I did some googling (which is like the worst thing you can do) and learned Crohn’s Disease can cause eye issues.
I suffered through it, wore my glasses at work, tried not to focus on anything up close and avoided bright light when I could. Tuesday or last week, it was unbearable. I worked from home and hid in the dark all day. By Wednesday, I knew something wasn’t right.
I emailed my GI doc and told him what was going on. I mentioned I had no idea if it could be related to my GI stuff, but I wanted to make him aware of it. On Thursday, I had my colonoscopy. My doc was shocked by my eyes. He didn’t realize it was both eyes, or how bad it was. This is when he told me that he was pretty sure this was Crohn’s we were dealing with.
Post colonoscopy, Crohn’s was confirmed. I’m not going to lie, I was really upset and felt extremely defeated. I’ve been dealt enough difficult cards in life and sometimes feel like I can’t handle anymore.
Luckily, I have a pretty awesome boyfriend, who came to my side when I was at my lowest. He let me cry, be angry and frustrated, but constantly reminds me that I’m strong and can deal with this. I’m also thankful for my family, who sent me get well flowers and are always there to answer my calls. My brothers an ER doc, and I’m so thankful he’s always more than willing to answer questions for me and tell me to stop googling my symptoms.
Crohn’s was not the answer I wanted.
Simple. I wanted something easy, curable. I already deal with all my heart stuff (which, truth be told, is not hard. I’m healthy and have done very well, and I’m beyond thankful for that), so it felt like adding fuel to the flame.
I can cry and be upset, but that won’t change anything. I’ll play with the cards I’m dealt and do it with a smile on my face. Some days will be hard and I’ll have my “why me’ days, but I am alive. I am healthy. I’m happy. I have so much going for me, so why let this take me down? I won’t. Not without a fight.
I am thankful it’s a mild case as of right now, I’ve been started on a high dose of prednisone (devil drug, btw) which I’ve taken before for transplant. Soon, I’ll start another drug to help put Crohn’s into remission. My eyes have cleared up (hallelujah) and I’m staying positive. I plan to continue with my strict paleo lifestyle to see if that helps. It’ll be a learning process to find out what foods can trigger flare ups and what not.
Obviously, I’m very new to all this, so if you have Crohn’s, please feel free to share any important information with me! As always, thanks for listening and supporting me y’all.
5 Comments
I am close with several people that have crohns. The severity of all their conditions varies from being in remissions for several years to having flare ups several times a year. Each one has different triggers, but the one trigger they all have in common is stress. If they let stress take over their lives then they will likely have flares. Keep your head up!!! You already have a great outlook on this so don’t let it get you down!! Let me know if you want to be put in contact with them and I can set it up!!
February 14, 2017 at 4:58 pmHey! Good for you for keeping a positive outlook! I know Living Loving Paleo has Crohn’s and even had to have surgery for it. Check out their blog and maybe even reach out! Can’t hurt to talk to someone who is using the Paleo lifestyle to help, just like you! Prayers girl!
February 28, 2017 at 3:04 pmThank you! I believe I follow her blog but will take another look 🙂
February 28, 2017 at 3:06 pmI found your blog through Comfy Belly – will for sure be trying your Buffalo Chicken!
I have Ulcerative Colitis and of course the first thing I am thinking is are you going to start following the Specific Carbohydrate Diet? It is naturally Paleo, although does allow cheese. There are so many SCD blogs out there, I am sure you are onto them. I have been on the SCD for 15 years and am quite happy and healthy. I still take a non-steroidal anti-inflammatory too. I noticed that your heart docs don’t want you to take probiotics – fermented veggies should still be ok? Look for Bubbies pickles – a yummy alternative to naturally fermented saurkraut which is also good.
But just want to say that my heart goes out to you, but of course you are already exceedingly well-equipped to deal with this. And already being grain free is a massive help to approaching this disease with diet.
I have lots of tips and tricks to making SCD yummy and a little easier, so feel free to reach out and I will share.
Love, Jennifer
December 4, 2017 at 9:22 amThank you, Jennifer!
I am hoping to do SCD soon. Unfortunately, at this time in my life, it’s been really hard to do, but it’s something I hope to try and stick too soon. I do eat a lot of dairy free yogurt and fermented veggies to try and get some good bacteria. Thank you again for your kind words! I really appreciate it!
December 4, 2017 at 10:42 am